“Barbara Prainsack raises deep questions about the ethics and politics of personalized medicine. In this rigorous and engaging book, she explores the cutting edge of health care, critiques several popular visions of patient empowerment, and offers a novel and compelling account of what truly democratic, responsive, and fair deployment of new health technologies would require. Displaying a mastery of diverse literatures in social science, law, and health services research, Personalized Medicine is a must-read for anyone interested in the future of patient participation in health and wellness initiatives—ranging from self-tracking to biohacking, and well beyond.”
—Frank Pasquale, Author of The Black Box Society: The Secret Algorithms that Control Money and Information
“Prainsack accessibly unpacks the complexities of ‘patient-centered personalized medicine,’ revealing startling redistributions of responsibility, diagnostic capacities, costs and profits. Providers lose autonomy as ‘algorhythmically supported’ diagnoses and care based on ‘health maps’ displace clinical judgement. Patients awash in information are increasingly responsible, and high costs make such care impossible for most. Prainsack envisions a personalized medicine for all the people, not for profit.”
—Adele E. Clarke, Co-author of Biomedicalization
"Prainsack’s rigorous review and synthesis of evidence on [patient] engagement from the fields of medicine, ethics, social science, technology, informatics, and law is quite compelling and makes this book a unique contribution."
"A thoughtful, thorough, and philosophical discussion of the many possible obstacles to the successful, equitable implementation of personalized medicine and its potential for unintended consequences."
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