Personalized Medicine

Empowered Patients in the 21st Century?

288 pages

4 b/w figures and 7 tables

December, 2017

ISBN: 9781479814589

$30

Paper

Add to Cart Available: 11/24/2017

Also available in

Subjects:

SociologyMedical Studies

Part of the Biopolitics series

Author

Barbara Prainsack is Professor of Political Science at the University of Vienna, and Professor of Global Health and Social Medicine at King’s College, London. She is the co-editor of several volumes as well as co-author of Genetic Suspects: Global Governance of Forensic DNA Profiling and Databasing and Solidarity in Bioethics and Beyond.

All books by Barbara Prainsack

Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality
 
Medicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium?
 
Personalized Medicine investigates the recent movement for patients’ involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare.
 
While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society.
 
Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them.